Coffee paradise 

Never have I had as flavorful and beautiful cup of coffee in my life, and since I love coffee and go to any coffee place that looks interesting this is a huge feat.


Press coffee offers almond milk as a substitute for milk, and when I asked what was good a vanilla latte with almond milk was suggested.  I agreed and headed out to sit with hubby and the dog at their outdoor seating area.

Tobacco free was the second good news of the day for me.   

The coffee was as wonderful as it looked.  Hubby got his usual iced sweetened latte and a ham and cheese croissant. It was a perfect start to our day. Overcast, and cool, under a tree so old that it had to have stands to help hold it’s branches up.

tree branch brace tree branch brace hanging basket img_0349 img_0350 Chaz hanging out on hubby's lap img_0356 img_0357 img_0358 img_0359 img_0360 there is age in beauty an old old tree

Located at 606 W French Pl, San Antonio, Texas 78212 It is a small area, great for working (inside or out depending on the weather) and the coffee is worth repeating.

You can view my full review at TripAdvisor.com

My Take On The EpiPen Debate

As a sufferer of Idiopathic Anaphylaxis the latest Epipen controversy has me a little concerned for a number of reasons.

My life could literally hang in the balance.

I don’t just carry an EpiPen or two.  I carry ten or more at any given time.  When I’m planning to go on a trip, I discuss with my allergist just how many EpiPens he wants me to take with me.

When we went on a cruise last year that number was 21, incase we were somewhere in the wilds of Alaska and I had to wait for emergency medical services.   That would give me almost two hours to live if we had to wait for medical services.  Since anaphylaxis isn’t something you can choose to treat or not.  It is literally a treat or die situation; I am dumbfounded at how a company can choose their bottom line over saving lives.

The answer I am seeing the most to the high cost of the EpiPen is to get an ampoule of adrenaline and a syringe.  

I have an issue here.

When you can’t breathe, you can do one of two things…

1) focus on breathing – it is kind of important after all.

OR

2) divert the energy I should be putting into breathing  to draw up the right dose of a life saving drug.

I do not see how this is an option for an adult who is often on their own.

For children who are around school nurses, or even at home with their parents I can see how the ampoule could be a viable option. (Though when seconds count making sure you have the right dose takes too much time). While still having the auto-injector for when the child is outside or at a friends house.

Fear of needles.

Let’s face it, the auto-injector is favored because you never have to see the needle.  I have a number of friends who will pass out at the sight of a needle, let a lone seeing actual blood.  So if my life is at stake I don’t want to be reliant on someone else to draw up AND stick me with a needle.  Because lets face it, if you prick me with a needle…I’m going to bleed, a bit. And if you have to use a syringe there is no way to hide the needle from view.

Then you get into the situation of needing a sharps container to dispose of the needle, and carrying multiple syringes incase you need more than one dose…. The list goes on and on.

So what are my options?

The News Media is talking up a couple of different manufacturers who plan to put out a generic auto-injector within the next year. However, my fear is that the FDA will rush them through without allowing the proper amount of time to test for viability.   One generic brand has already attempted to release an auto-injector but was shut down because it didn’t deliver the correct dose.

Another question I have is, how can they be sure the generic adrenaline will be as effective?   Not to mention…for me specifically…will they work?  Since I also have adverse reactions to Soy and Yeast, AND other drugs – namely steroids- there are no guarantees that a generic will work for me. Since one of the reactions I have to these additives is anaphylactic you can imagine my fear of using a new product.

So where does that leave me in this medical corporate greed era?

My personal take on the issue.

Since I am often out doing errands on my own – quite literally taking my own life into my hands to keep up with the demands of our household – having things pre-measured is a must.

My husband found me small containers which I filled with the exact dose for my antihistamine I’ll need at the start of an attack.  This way I’m not carrying around the giant prescription bottle filled with the magic elixir and trying to find the measuring cup, and measure out exactly 15cc’s of the medicine when I’m oxygen deprived.  Believe me when needed I’m not afraid to just put the whole bottle up to my mouth and pour, which isn’t a good thing.  So my little bottles are a must!

However, I wouldn’t be able to pre-measure the adrenaline as it cannot be exposed to sunlight for long periods, thus a pre-filled syringe would not be a viable option as it could degrade to the point of being ineffective, which leaves me having to draw up another dose when I’m even worse off than when the attack started.

Let’s get real:

Do you see the snowball effect here?  It’s act quick and decisively…or…die.  There really isn’t a middle option unless you can afford to have a certified medical person with you at all times.

Also there are times when more than two doses are required (for me), if I’m by myself, I’m screwed because at that point my oxygen levels are down to the point that I can’t count to 10, let alone focus my eyes adequately enough to read the line numbers on the syringe.

So the auto-injector is vital to my survival.

Also when it comes to other brands I have to not only be careful of what’s in the new brand, but also whether or not it will work as effectively as what I currently use.  Believe me, most of the time I fall into the .01% of people who it won’t work on.

( I don’t carry the mantlet of medical freak lightly, I have earned it!  Even the National Institutes of Health don’t know what to do with me.)

I will be having a long talk with my Allergist about what to do when I get my new prescriptions from him.  I’m very much a ‘stick with what works’ person, so if my insurance says no to the EpiPen, I’m not sure what I’m going to do. Aside from having major panic attacks about leaving the house.

The stress of switching brands.

Aside from the stress of wondering if the generic will work there is also the issue of new procedures to use the auto-injector.  Apparently the one generic that is offered currently has two caps that need to be removed before use, not one as the EpiPen has.  So for someone who often has to jab the auto-injector into her own leg, this means learning new moves to ensure a successful dosing.  Not the easiest thing when you’ve been using one style for over a decade.

I know it doesn’t seem like that big of a deal, but believe me it is.  Muscle memory is a real thing, and it is vital to my survival during an attack.  I have to focus on getting air past my swelling airways and into my tight lungs in order to survive. So that means if I get distracted on something crucial like…opening an auto-injector I could pass out before I can get the meds into my system, which literally lessens my chance of survival.

 

*All articles were found on either CNN or Fox, for more information I urge you to search out these articles and arm yourself with information. 

5 Things I Do Before Trying A New Restaurant

When you have food allergies, no matter how severe, there is one thing that strikes fear in your heart like none other…eating at a new restaurant.

Here are a few steps I take before trying a new restaurant.  They aren’t fool proof, and it doesn’t mean that you will be able to eat anything you want on the menu, but they should save you a few uncomfortable evenings after diner.

1. Look them up on line especially pay attention to their menu. If they have instructions at the bottom…* eating undercooked…yada, yada, and it also says to “alert your server if you have food allergies”… then in my experience you should be in luck.

2. Call them, but not at a peak time.  If you google the restaurant during their peak times should be listed.  When you call them ask, specifically, to speak to a chef or the kitchen manager. Do not just talk to whomever answers the phone, if they aren’t aware of food allergy severity or if they aren’t a part of the ordering process they will not be able to thoroughly answer your questions.

3. Get a name for when you go into the restaurant. This way you can give your server the name of who you need to talk to concerning your allergy.  I always call, then double check when I get there.  You can never be too careful.

4.  Get a card listing your allergies, your allerigst should be able to help here. If not there are companies who will make them for you.  This makes it easier for your server. They can take the card back to the kitchen so the chef can come out and quickly lay out your options.

I’ve been asked several times if I had a card, which I don’t because of the nature of my allergies, it’s hard to list out what I’m allergic to.  Often people assume that since I’m allergic to soy, so long as there is not soy sauce I should be fine.  But that isn’t the case. I have make sure there’s no mayo, or that the restaurant only uses real butter as opposed to a margarin butter blend. And the list goes on and on.  Never be afraid to repeat yourself.

5.  Keep your expectations in check. I can’t tell you how many times I’ve gone to a new restaurant and had one of two things happen.

I either found I could only have one thing on the menu, or that the chef would have to make something not on the menu for me. Which I have to tell you isn’t such a bad thing.

OR

I can have anything on the menu, that isn’t asian inspired, and I’m so overwhelmed I can’t decide.

Conclusion

While I’ve come to appreciate the chef who is willing to go off book, I typically get food that is so good I’m willing to eat the same thing every night for a week.  It’s not always that easy.

Once when on a trip we went to a seafood restaurant in Las Vegas.  I had called a head and talked to the chef, so they were prepping an area in which to make my food and we had settled on what would be made for me.

We were on a field and track trip so there was a rather large group of us going.  When we got there, I spoke with the chef again confirming that I could eat what was being offered.  While I was doing this the server came and took everyone else’s order.

Once my order was confirmed: pan fried trout (a personal favorite), steamed asparagus, potatoes and brussel sprouts, and an olive tapenade.  I sat back and enjoyed the conversations going on around me.  As everyone’s orders began coming out, seafood platters, crab cakes, a bunch of deep fried goodness I sat there calmly waiting for my food.

The chef brought it out himself.  After confirming everything looked ok, the chef returned to the kitchen and I looked up to many pairs of eyes staring at my plate.  One of my friends raised his hand, while looking at my plate and proclaimed, “I think I have food allergies”.  HA!

I must admit it was one of the best meals I had had up until that point in my food allergy journey.

On the opposite side of the coin, we recently had a new restaurant open here and I made the mistake of calling during their opening night.  I checked for peak times and none were listed, I quickly realized why none were listed.  Anyway,  I talked to someone in the kitchen who was very frazzled, and she asked that I email, but also said that she would get some answers and call me back.

I emailed them asking about their menu, and never heard a thing back.  It’s rather disheartening, but I will not eat there. Hubby has asked a couple of times about it, but since I do not have answers I will not be eating there.  It’s that simple.

What are some steps you take to ensure you don’t take a hit when eating out?

Dog friendly restaurant in Colorado Springs!!!!

I must admit that this idea has me intrigued.  My biggest complaint about traveling with Chaz is getting food.  Thankfully there are a few places we can go to eat where we can have him on the patio, and I can sit there too, but for the most part its easy (unhealthy) take out, or order and go pick up from nicer places. However, eating a steak with a plastic fork and knife in a styrofoam container…is not easy. I know I’ve tried.  I’ll have to continue to keep an eye on this and see if I can eat there when it opens.

Let me know if you hear anything about this place Pup Dog Colorado!